Sunday, September 22, 2013
Time to move my thoughts to a different blog...
I have decided to continue blogging, but on a different blog. The new blog is http://hopeanchorsyoursoul.blogspot.com/ I feel I need to share the things I have learned and am still learning through this whole process...being widowed definitely has it's challenges!
Friday, March 15, 2013
Thankful for small miracles...
On Sunday, March 10th, I started to feel those
same familiar pains in my left side…I was not happy…I did not want to have to
deal with this right now on top of everything else. I kept praying for a miracle. I became so sad
and discouraged because the pain was not improving as the day wore on…in fact,
it was progressively getting worse. I
knew that I would be headed to the doctor in the morning…where was my miracle?
I did receive a miracle…just not the one I had been praying
for (to be healed)…I was sitting on my bed using my ipad…I decided to check
facebook…which I never really do on my ipad…I noticed Paul’s name on the side
bar. I decided to click on it, even
though I knew he wasn’t really on there.
This is what popped up:
To read those words,” MISS YOU, LOVE YOU-“good night sweetheart”
sing to the girls and give them a kiss for me.”
Wow! I couldn’t believe it…I
started to cry…Sophie was sitting by me on my bed…I got up to go downstairs so
I could REALLY cry. She asked me where I
was going and if I was crying. I said
yep, I am crying a little because I miss daddy.
I also told her I needed to go down stairs for a few minutes.
As soon as I got down stairs, I really started to cry. I called a couple of friends to come over and
see the message…so, people would believe me…actually, I guess it was so I would
believe it. They were as amazed as me.
They suggested taking a picture (that hadn’t even occurred to me). So we did…now everyone can see the message.
I looked at the date on the message and from where it was
sent. I noticed April 19, 2010, 8:39
p.m. I also noticed it said it was sent
from the web, not from heaven! Anyway, I
couldn’t remember Paul ever sending me that message. I wracked my brain and couldn’t think of
where he would have been that he would send that message to me. After a little digging and research, I
discovered that it was the only private message he sent me on Facebook and it
was when I took the girls to St. George for spring break (he wasn’t able to go
with us).
This message was written to me three years ago and I don’t
remember ever reading it (I probably did, I just don’t remember). I know that
it was a message from Paul, for me to not only read then but to read now, to
help me with my sadness. Just as the scriptures were written many years ago…we
are told to read them daily because we forget what we read and we need that
reassurance and knowledge that God does love us and wants to help us. Paul sent
me this miracle as a reminder that he loves us and is watching over us. I have re-read the message daily to help me
cope with his loss. I need that constant
reminder that he loves me and misses me as much as I love and miss him…it is
weird but you start to doubt that they still love you and miss you…I guess I
feel like he will forget about me and move on…
On Monday, I went to the doctor. Of course, my diverticulitis is back. I go daily to my doctors office and get a
shot of antibiotic for seven days.
Today, I got my fifth shot, so I am almost done. Yeah!
Because I have had several flare-ups my doctor has suggested
I have surgery to remove part of my colon.
I meet with a surgeon on Tuesday to discuss my options. I honestly don’t want to do surgery if I can
help it. Diverticulitis is definitely a
problem that is worsened by stress…let’s see have I had stress in my life
lately?
Anyway, I may try a few other things, before I do the
surgery, to see if I can prevent it from happening again. I will know more once I meet with the
surgeon. It is the same surgeon who
removed Paul’s stomach…that might seem a little weird at first... he is an
excellent surgeon.
On the day I went to the doctor, Hailey called me from
school at about 2:15. The first thing
she asked was when I would be having surgery. I explained to her that I may not
have surgery and I still needed to meet with the surgeon. Then she said that her stomach had been
hurting and she really wanted to come home.
I asked her if she felt like she could stay until school got out at
3:30. She said no.
When I picked Hailey up, I asked her is she was sick because
she was feeling stressed. She said yes
and started to cry. She told me that she
was worried they were going to cut me open and find cancer. She said that she was so afraid that she was
going to lose me too. I reassured her
that my problem is not cancer and that I won’t die anytime soon (for my
children’s sake, I hope not). It breaks
my heart that my children have to worry so much about these things now…
This morning, Sophie woke up with a big smile on her
face. She said, “Guess what mom?” I said, “What?” She said, “I had a dream with daddy in
it. He told me that he loved me very
much!” I asked her where he was while he
talked to her. She told me that he was
hanging Christmas lights on the house.
She said, “Oh, mommy it felt like he was really here with me.” She also said, “Isn’t it great that daddy was
with us in this room last night helping me to have good dreams?” Of course, I was so happy for her. I told her that it is great blessing to have
her daddy watching over us.
As soon as Hailey woke up and came in to my bedroom (Sophie
has been sleeping with me), Sophie told Hailey all about her dream. I am truly
grateful that Sophie had that experience.
She really needed that…I hope there are more experiences like that for
her and the rest of us. Okay, I must
admit, I was a little jealous that I didn’t get the same dream…I actually had a
horrible dream last night.
Getting through all the paperwork, health insurance issues,
and other miscellaneous things have been quite exhausting. I have spent hours on the phone. Just thinking about it makes me tired. Health insurance is definitely the worst
issue…at first they told me I was going to pay $1600 a month…then they sent me
something in the mail that said it would be $99 a month…then they finally
called me and told me I would be paying $480 a month for six months and then
the price will go up to the higher amount…they are subsidizing for the six
months. They still can’t tell me what
the higher amount actually will be…somewhere around $1100-$1600 a month.
I have been calling on private insurance, which we will
eventually need anyway. Well, that has
been a joke. They won’t accept me
because of my diverticulitis. They said
the only way I would be accepted is if I have the surgery…then the insurance
companies will look at me in 1-2 years afterward.
I asked about individual plans for just my children. Because of Obamacare, the insurance companies
will not do individual plans for children.
Evidently, in 2010 a law was passed that all children under the age of
19 have to be accepted for health insurance regardless of their health
status. This was not well received in
the insurance industry, so they felt they needed to change their policies…I
won’t go into all the details here…
Anyway, I have actually discovered a benefit for me with
regards to Obamacare. As of January
2014, Insurance companies can no longer deny people insurance due to health
issues. Everyone will be entitled to
it. I have always felt strongly that
everyone should be entitled to health care…now, I just have been placed in a
position where I feel even stronger about it.
Because I don’t want to get into political issues here, I will just say
that I am relieved to know that we can get health insurance next year… Cobra
can get very expensive!
Today I am grateful for the beautiful sunshine that we have
seen for the last couple days. I am also grateful for my amazing family and
friends who continue to support me with love, help, and kindness.
I miss Paul every day.
I have felt his presence with me at times….I just wish it could be all
the time! Maybe I will get a dream like
Sophie tonight!
Thursday, March 7, 2013
Trying to adjust...
Paul has been gone for 10 days now…which means I am 10 days
closer to seeing him again! I am trying
to keep really busy so I don’t do much thinking…but there has been a couple of
days that I was not very successful…my emotions definitely got the better of
me.
Paul’s funeral was amazing!
I am so grateful for all the wonderful family and friends that came to
show their love and support. What a
tribute to Paul!
After Paul’s funeral service, we had hired a man to play the
bagpipes at the graveside service. He
played Highland Cathedral…it was so beautiful.
We also released 6 white doves and 52 (Paul’s age) light blue balloons.
I know that Paul was very pleased!
Paul had the best day he’d had in a couple of months on
Valentine’s day. It was such a good
day. I believe it was a tender mercy from
God. We got to have a last wonderful day
together as a family. By the next day he
started to decline again…
Our older children came and spent a lot of time with us the
last two weeks of Paul’s life. It was
nice to have visits with the grandchildren…sit around in our bedroom by Paul
and talk about everything under the sun…including his funeral arrangements. I
know that even when he couldn’t say much while we were talking, he was
happy. Every once in awhile he would
give a thumbs up sign…or nod his head in agreement. It was very hard for him to talk. He was happy because his family was here with
him. His family was the most important
thing to him.
The last week of Paul’s life was so painful to watch. He had terminal agitation…he had
hallucinations, severe restlessness, anxiety, etc. A few nights before he passed away, was the
most brutal. He kept getting up every 10
minutes and trying to get out of bed. I
would hear him and look over to find that he had ripped off his oxygen and was
sitting on the chair by his bed trying to get up. I would go over to him and he was gasping for
air because he needed his oxygen to make him more comfortable. I would get the oxygen put back on and get
him back in bed…only to have it happen again about 10 minutes later.
By about 3:00 a.m., I was so exhausted I went and got Sheila
to be with him while I went to get a little rest in the other room. I was grateful to have our older girls
spending the nights that week with us because I found I needed their help on a
regular basis. Paul could not be left
alone at all…my sister came and stayed the weekend with us as well. It was amazing how many of us it took to care
for him.
The biggest problem at this point for me was that I was so
exhausted. I had been Paul’s primary
caregiver for months now. I was the only
one trained at home to give him medications in his port and/or PICC line. Finally the Friday before he died, we trained
the girls how to do it as well. Which
turned out to be a huge blessing for me.
Another problem was that hospice had not given us adequate
medications to make him comfortable. I
will not go into detail of the mistakes, but lets just say that we did not get
morphine and Haldol going until the Friday before Paul died. Those medications made a HUGE
difference!!! He was finally able to
relax and just sleep.
Paul slipped in to a coma on Sunday, February 24th. I knew that he was going to be dying very
soon. I woke up Monday, February 25th,
at about 3:45 a.m. I was listening for
his breathing…I could not hear anything…I touched his chest…I could not feel
any movement…I flipped on the light…I watched to see if there was any
movement…there wasn’t any…I knew he was gone.
I am grateful that I awoke when I did because he must have just
passed. He still had some coloring in
his face and his head and upper arms were still warm. Had I woke up much later, he would not have
had any color or warmth left. I really
feel like his spirit woke me up so that I would not wake up to his body all
cold and grayish…about 30 minutes after I found him, he did not even look
himself at all…he had no coloring left (very grayish) and was very cold to the
touch…I think that would have traumatized me to wake up to that.
I think the hardest part of that day was when the mortuary
came and got his body. I could hear them
getting him off the bed and bringing him down the stairs (I did not
watch). My friend had come over and got
the girls so they would not have to see them take their daddy out of the
house…that was not a memory I wanted them to have.
My heart is very happy for Paul, but very sad for me. I could feel that he was happy to be free
from all his pain. I could feel his
presence with me. In fact, I felt his
presence with me a lot last week. Oh,
how I love that man!
The night of the viewing was the first time I saw Paul since
his death. I was not sure what I would
find. In fact, I was thinking we would
probably have a closed casket funeral.
He did not look anything like himself when he died. He was so thin…somewhere in the 120 pound
range (he was 6’3’’ tall). Ultimately, I
watched my husband starve to death. He
looked like he had been in a concentration camp…
As I walked into the mortuary that night, I totally lost
it. I did not want to see his body…I just
wanted to run away as fast as I could…I did not want to have the image I had in
my mind, on the day he died, brought back into my memory. He did not look like Paul.
Family came out into the foyer and told me he looked okay,
so I finally went in and saw him…I really cried…but I knew it was just the
tabernacle that housed his spirit…he was not there. It still did not look like Paul to me…but at
least he had some coloring (from all the make-up). I could feel his spirit with me, which
brought me great comfort!
I have my good days and my bad days. Yesterday was definitely the worse day I have
had yet. I cannot adequately describe
the sorrow you feel when you lose someone you love so much. Your whole body aches with sorrow. I think I was dehydrated yesterday from all
the crying… I think I am getting a small glimpse of what our savior felt…
I have prayed to Heavenly Father that I won’t have to feel
this sorrow…He is helping me through it, but I still have to feel it. We are here to experience mortality. The only way we can truly understand sorrow
is to experience it. The purpose of our
earthly life is to learn things here in a mortal body…things that cannot be
learned without a mortal body.
I am grateful for loving family and friends who are helping
me through this difficult time. I know
that Paul is still watching out for us!
Monday, February 25, 2013
Fought a good fight...
My sweet husband Paul passed away at about 3:45 a.m. today. Every
day I try to find things to be grateful for.
Today I am grateful that he is out of pain and is very happy. His spirit is free from a very tired and sick
body. Fortunately, his trial is over…I wish I could say that mine was over, but
I know that I am just beginning in to a new phase…
Even though, I am glad that he is no longer suffering, my
heart feels as if it is breaking into a million pieces. I feel very lost and lonely inside. I already miss him desperately and it hasn’t
even been 24 hours…the tears have been flowing very freely tonight. I keep looking over at where he was laying
just last night…oh, how I would love to see him…hear him…feel him. I honestly hope that I am strong enough to do
this…this is the hardest thing I have ever been faced with…I can hardly believe
that I am a widow.
I am too tired to share much tonight. I hope I have the energy to write more
tomorrow about the things we experienced the last two weeks of Paul’s life.
For now, I just need to say…Cancer sucks!
Wednesday, February 13, 2013
It is time for hospice...
Since I can’t sleep right now, even though I am totally
exhausted…I guess I will update the blog.
Our life was, once again, turned upside down yesterday. We went to Huntsman to attempt Paul’s 5th
round of chemotherapy. While we met with
his oncologist, we discussed how sick Paul has been. He has still been running low-grade fevers,
having severe abdominal pain, and a lot of nausea and vomiting. The doctor examined him…said he heard no
bowel sounds…said Paul’s gut definitely looked more bloated…then he said the
news no one wants to hear…”Paul, you have fought a good fight, but it is time
to stop fighting…the chemotherapy is not working…you need to go on hospice and
let them help you be as comfortable as possible…”
I cannot say that I was shocked with the news I just
heard. For several days I had feelings
that is what the outcome was going to be.
I knew driving down that day we were going to be done…no more
chemotherapy. Paul said he knew the
same.
Even though we knew this was coming down the pipe, both Paul
and I cried intensely hard. Every time
we would look at each other yesterday we would cry. I don’t think you are ever prepared to hear
that you are going to die soon…
We were fortunate enough to get Paul in with a pain
doctor after his appointment with his oncologist. The doctor made room in his schedule to do a
celiac plexus block (this procedure is
used for pain control by blocking the nerves which come from the pancreas,
liver, gall bladder, stomach and intestine). Paul has had a lot of relief from pain since they did this procedure
yesterday.
In the
meantime, we are now utilizing hospice. We are working to “tweak” the medicine for his
nausea and vomiting. That has been very
difficult to control. He has had little
pain all day today, but he is still having bouts of nausea and vomiting.
We have been
told that he will probably live 7 to 10 days because of his
situation…obviously, it could be less or slightly more…it is in God’s hands
now. One of the main reasons why he will
go quickly is because he cannot eat or drink by mouth because of his bowel
blockage. He is already so thin and
frail. He is no longer on TPN because it
is not used for someone who is terminally ill.
They let us keep Paul on it long enough to give this new chemotherapy
drug a chance…I really wished the drug would have worked.
Last night
was rather strange…we lay in bed talking about his funeral. We haven’t talked much about him dying or his
funeral because we have been too busy fighting to keep him alive. It is hard to stop fighting…everything
inside me keeps saying there has to be something else I can do…it just can’t be
over…I don’t want it to be over…but, he is so tired and weak…he has suffered so
much…it has to be over…he shouldn’t have to suffer any longer…this nasty cancer
is ravaging his body.
Tonight,
after we finished up with the girls valentine cards, we pulled out the video
camera and asked daddy questions. The
girls always want to play with the camera, so this was a great opportunity to
have some fun as we create a video for future viewing. We are trying to create memories that are
positive for the girls. This will be fun
to watch together and help us to remember just how amazing their daddy was/is!
Right now I am
so grateful for loving family and friends.
I am able to do what I do because of all the love and support I am
receiving. Thank you all!
Sunday, February 10, 2013
Trying to make sweet lemonade...
Yes, I know, it is time for an update. Everything has been so crazy lately that I
have been too exhausted and busy to even write. I am not sure where to begin, so I guess I
will just start somewhere.
Paul was hospitalized this past Monday, February 4th. He has been spiking fevers off and on for
several weeks now. He also had a wicked
cough…which progressively got worse.
Each time we went in to the doctor they would listen to his lungs and
say he was fine…didn’t hear anything indicating problems.
We thought Paul’s fevers were related to his chemotherapy,
since they had already checked his blood and stool for infections twice, and
couldn’t hear anything “crunchy” in the lungs.
He had been following the same patterns each time he had
chemotherapy…chemo on Tuesday…very nauseated and sick on Thursday…chills and
fever on Friday…start to feel better on Saturday. He had also been having a sore throat and
other flu like symptoms, which can be side effects from this chemotherapy…a bad
cough is also listed as a side effect.
So, we all just started to think it was chemotherapy side
effects…especially since his fever would come and go.
On Friday, February 1st,
Paul spiked his fever again at 103.5…just like the previous week. It started to go down a bit, but not as
quickly as usual. He seemed a bit better fever wise on Saturday
and Sunday, but then by Monday morning he spiked another fever of 104….his
cough had also gotten much worse. I
called our nurse and told her about the situation. She agreed we needed to get him up to the
Acute Care Clinic at Huntsman as soon as possible.
When we arrived at Huntsman, Paul’s fever was about 104.5,
so they immediately started filling ice packs and putting them around his body
to cool him down. In the mean time they
started taking blood and urine to start looking for infection. We talked to the doctor about his persistent
cough. He listened to his lungs and said
he couldn’t really hear anything that sounded like a problem, but he felt like
they needed to do a chest x-ray to see if he had pneumonia. He said that people with compromised immune
systems (especially people with cancer) present differently with pneumonia…you
can’t always hear it.
Paul’s blood work indicated that there was infection
somewhere in his body. The chest x-ray
revealed that he did have pneumonia. It
was mostly in his right lung. He was
admitted to Huntsman Hospital to start on IV antibiotics. They also started to give him Tylenol via IV. Paul cannot take anything by mouth, unless it
can dissolve under his tongue…this makes it difficult to give him medications
at home. I had forgotten (until they
brought it up at the hospital) that there are Tylenol suppositories, but Paul
was not too anxious to have something put where the sun don’t shine…if you know
what I mean!
On Tuesday, February 5th, Paul and I celebrated
our 13-year anniversary together in his hospital room. I wish I could say it was the best
anniversary ever...I can’t say that, but I am grateful that he was alive to
celebrate it with me.
After spending two days at the hospital, I felt like I
needed a day to stay home and get things done (laundry, etc.). I was very tired, emotionally drained, and
was missing my daughters. I wanted to
pick them up from school and spend the evening with them…they have been going
to many different friends homes to be taken care of. I felt like I needed to be with them…I needed
to be there mommy…we just needed to do something together.
Sophie is really struggling with all that is happening. She yells at us a lot and is just plain
difficult. She is very demanding and
does not want to cooperate at all. Her little six-year-old brain is just
struggling to deal with all this…my brain is having a hard time with all of
this, I can only imagine what my children are going through. I am working to get us in some therapy to
help with this situation.
Sophie’s best friend has always been her dad. She always wanted to be with him (mowed the
lawn with him, watched army shows with him, wrestled with him, watched sports
with him…yes, she is a tom-boy). Paul
was her everything. After his cancer
returned, she would not go near him…hardly even talk to him. It was very heartbreaking for Paul. He cried because he felt so bad.
One day Sophie was sitting on the bed by me. I tried to get her to move closer to her dad
so there was room for me. She would not
budge. I asked her if she thought she
was going to catch is cancer. She didn’t
really respond. I explained to her that
she can’t catch it. She said she was
worried he might catch something she had (there could be some truth in that
since she is a germ-a-phobe, but I think she was worried about catching his
cancer too). I explained that it was
okay to sit next to him. She still did
not want to move…fortunately, now, after much coaching and comforting her, she
will get closer to her dad and tells him she loves him again. She will sit by him on the bed and watch
shows with him again.
Hailey is only nine, but it seems as if she has the ability
to look at this through more of an adult point of view. She was diagnosed with Asperger’s when she
was six, but to be around her now, you hardly even see that in her
anymore. She has a lot of wisdom and
understanding for her age. She is
handling this much better than we thought possible. She has actually been a support to me. Like
the rest of us, she has her moments of absolute tears. Her teacher had to call me the day we checked
Paul in to the hospital for Hailey to talk to me. She was crying…she was very worried about her
dad. I didn’t tell her he had pneumonia
because she knew that her grandma had died five months ago from that. I just said he had a very bad cold and needed
to stay in the hospital to get antibiotics (I think she knew that he had
pneumonia because she is so smart…she just pretended to believe me that it was
a cold).
Let me get back to the story. A couple of my amazing friends knew that I
was having a rough day. It was one of
those days where you cry and cry. A
little while before it was time to go pick up Sophie at school (Hailey would
not be home until 4:30 because she went on a skiing field trip with the fourth
grade), they showed up at my home with all the makings for a party. There was a cake, cookies, pizza, balloons,
chocolate, a movie and several other goodies.
They knew I wanted to spend time with my girls and have a fun night
together. It was such a blessing. I knew that my girls would be excited when
first, I actually picked them up from school and second, they got home to see we
were to going to have our own little party.
I was right! You
should have seen the look on Sophie’s face when I was waiting outside her
classroom to pick her up…she ran up to me and hugged me. Her teacher said he was glad to see me and
kind of told me that she has been struggling with being very distracted while
at school…she has not been herself. I
told him we were going to have our own little party that night. He thought that was a great idea. He even asked if we were going to
McDonald’s…my first thought was oh no, why did he say that…now we have to go to
McDonald’s because he said that…then I realized I had originally planned on
letting them choose what they wanted for dinner (of course, I was hoping it was
pizza, but I figured we would eat that the next night)…sure enough Sophie was
all over that…McDonald’s it was going to be!
I knew Hailey would be fine with that.
When I got Sophie home, she was thrilled to see the balloons
and all the goodies. It really was
priceless! We had to wait to pick up
Hailey at 4:30 and then we would head to Mickie-D’s! I convinced Sophie to help me clean the
guinea pigs cage before it was time to go…that is always such a fun
task…not…those little boogers sure do poop a lot…not to mention they don’t
smell real nice…good thing they are so cute!
When we picked up Hailey we told her our plans. She was excited too! They decided it would be okay to go through
the drive thru and head back home to start our party (I must say I was
pleasantly surprised with that decision).
We had a great time partying together that night!
On Thursday morning I headed back up to spend the day at the
hospital. We were hoping to bring Paul
home. They said we could not bring him
home unless he had a bowel movement…do you know how hard it is for someone to
have a bowel movement with a bowel blockage? Actually, Paul has had diarrhea
off and on through this whole bowel blockage…only now his bowels decided not to
cooperate…he wasn’t having any movement…
Yes, even if you are not eating by mouth, you still make
poopies! Your bowels continue to shed
and release fluids and toxins all the time...therefore, you continue to
poop. If you stop having any bowel
movements you are in trouble because that means your bowels have stopped
working properly…I won’t bore you will all the medical details, I will just
leave it at that.
By about 11:00 a.m. (after Paul finally made a poopy) it was
decided that we would get to bring him home.
I won’t go in to all the gory
details, but it took them until 5:30 to get us released from the hospital. I was extremely irritated because I was
hoping to be home to get the girls from school at 3:30 and then get them ready
for the daddy-daughter dance at the school that night.
When we realized by 2:00 that was not going to happen, I
called my friend (she probably is starting to dread my name showing up on her
phone) to ask if she would get my kids.
I told her that they had to run one more IV of antibiotics because they were changing his dosing to three times
a day instead of two. Evidently, his
numbers from some blood test were showing that he was not in the right range
for the antibiotics to be as effective as they should be. He is on two antibiotics, Vancomycin and
Levofloxacin. He was originally getting
one dose a day of Levofloxacin and two doses a day of Vancomycin. They determined they needed to add in the
third dose of Vancomycin.
By the time the antibiotic dose was complete and the nurse
finally got around to discharging us, it was 5:30. I was pretty unhappy because I knew that I
needed to be home to get my girls ready for the dance that was starting at 6:30. They had me ask their grandpa to take them
because they really wanted to go. He was
very excited to take them for us. I must
admit, I am glad that he was willing to go with them, but I was very sad that
their daddy could not take them. It
makes my heart ache thinking about those things.
When we got home from the hospital, the girls were already
at the dance with their grandpa. Once
again, my friend rescued me!
The girls were excited when they got home and saw their
daddy. By about 9:00 Hailey, told me she
had a headache and wanted to head to bed.
I went in to give her some Tylenol…the next thing I knew she puked all
over the bed…I quickly had her run to the bathroom in case she had more to
spew! You would think as much vomiting I
am around that I would get used to it…nope, I still get the dry heaves…I am
pretty good at being a nurse except for when it comes to vomit…I even dry heave
while I am trying to rinse Paul’s barf bowls…I always feel bad when I do
because I don’t want to make him feel uncomfortable…especially since he vomits
several times a day…
Anyway, I grabbed all of Hailey’s bedding and threw them in
the washing machine. She came down
stairs and sat on the couch with a bowl in case she needed to barf again. Sure enough she did and she missed the
bowl…now I had more jammies and another blanket to wash. I just need to say, this was no ordinary
vomit…it smelled so bad!
In the mean time the home health nurse had shown up to make
sure we had all the supplies and things we needed. She was kind and started to help me with
Hailey, while I was in the bathroom dry heaving! I felt so exhausted, I could not believe that
I had another sick person to deal with. Fortunately
for us, she was only sick that night.
She didn’t go to school the next day, but she was feeling much better.
I give Paul four IV’s of antibiotics a day, in addition to his
TPN. We start at 6:00 a.m., 10:00 a.m.,
2:00 p.m., and 10:00 p.m. We finish up
with the last IV at midnight…head to bed…get up at 6:00 a.m. and start all over
again. Each IV runs for about 2 hours.
Last night was not a good night. Paul was very sick! He was also in a tremendous amount of pain. Needless to say, neither of us got much
sleep. I am hoping for a better night
tonight…we are in serious need of sleep.
Due to the pneumonia, we were unable to do chemo this last
week. We have done four rounds and are
supposed to do two more before they do a scan.
We will go in this Tuesday for our next appointment and hopefully do
chemo.
We are hoping the chemo is working, but we honestly don’t
know. His bowel blockage is not
improving. However, we are not convinced
it was being caused by tumors. This
problem all started right after he had his biopsy. We saw the scan the week before he had his
biopsy and we did not see any tumors where the blockage appears to be. Our hope is that the tumors are shrinking and
that they will be willing to do surgery to fix the bowel blockage…but who
knows…it may just be wishful thinking.
Today, the girls and I made cupcakes (we were given a gift basket by a friend that had the items to make cupcakes). It was fun to just spend time with them and listen to them giggle. I love it when they are happy!
I have been thinking a lot about the phrase, ”When life
hands you lemons, make lemonade.” What
does that really mean? I visualize the
lemons as things like cancer, someone losing their job, death, unexpected
tragedies, etc. But what is the sugar
that sweetens the lemonade? After all,
lemonade needs to be sweetened with something or it can be very bitter and not
really that delightful to drink.
After thinking about this for a while, I have decided that
gratitude is the sugar that sweetens the lemonade. If you have gratitude, things don’t seem so
bitter in life. If you remember that
while you are being squeezed by life’s trials (lemons), you have the ability to
be grateful (sugar) and focus on the blessings and tender mercies. If you add enough sugar to lemonade, it can
be very delicious.
The hard part is remembering to be grateful when things look
so bleak. Lately, I have been realizing
how many blessings I have been given.
I am grateful for a daughter who saw that I needed help to
get the oil changed in the car because I don’t have the time do it.
I am grateful for daughters who are willing to come and
spend time with their father at the hospital when I can’t be there.
I am grateful for friends who run errands for me and bring
me the things I need (food, new broom, toiletries, etc.).
I am grateful for the
phone calls and messages I receive from friends and family.
I am grateful for
friends who shovel my sidewalks.
I am grateful for friends who have helped me with my
children.
I am grateful for a sister who helped me to get my husbands
anniversary present because I didn’t have the time or the knowledge of how and
where to get it (a reel for his fly rod and fishing line).
I am grateful for friends who are willing to drive us to
Huntsman if needed.
I am grateful for friends who drop whatever they are doing
to come bring me dinner at the hospital.
I am grateful for all the gift baskets and goodies we have
received.
I am grateful for all the meals that have been brought over.
I am grateful for each and every kind act that has been
shown toward my family. There are too
many to mention individually. We have
been so blessed! Much love and thanks to
everyone!
I just have to remember all the things I am grateful for, so
I don’t feel bogged down by everything that is happening…After all, I would
much rather have sweet lemonade to drink!
Thursday, January 24, 2013
More on the home front...
Where to begin…January 14th, I went in to the
doctor with lovely pains in my left side.
Unfortunately, I know those pains all to well…my diverticulitis was
back…actually, it was probably never completely healed from my episode in
December.
At my appointment, the doctor agreed we would use a
different type of antibiotic (I had used this previously and it worked
well). The reason they don’t give this
antibiotic on a regular basis is because it comes in IV form or via
injection. There are no pills available
to take. He suggested I do the IV,
because even though I would have to come in daily for a 15-minute IV drip, the
shot was quite painful.
I elected to do the IV. The nurse attempted to put a peripheral venous
catheter (tube used to get IV’s) in place.
She tried to put it in my forearm…completely missed the vein…then she
attempted to place it in my left hand…after much digging around and causing me
great pain, she realized that she had just blown my vein…she then moved on to
my right hand…the same thing happened…all of the sudden I felt very woozy and
light headed…I told her I didn’t feel right…the next thing I know I was waking
up…evidently, I passed out…I have never passed out before…that was a strange
experience…fortunately, she caught me as I started to fall forward and she laid
me back on the exam table.
Needless to say, after having no success at getting the
catheter in place, I was given an injection.
Yep, it hurt! Because I had to
have six doses, I had to go in daily to receive an injection…I was so glad to
have that over with…thank goodness it seems to have worked…I am feeling
better. In all honesty, I would probably
elect to do the injections again if I had to, because it only hurt for about an
hour afterward. It beats taking six
antibiotic pills a day and it is more effective!
Because I felt woozy for a while, I called my friend to come
and get me. I was in no condition to
drive home. I am so grateful for amazing
friends who help me all the time! She even got to be there to support me while
I got my injection…lucky her!
Paul had chemo number two on Tuesday, January 15th. Because I was not feeling very good, our
neighbor took him up to Huntsman and our daughter, Sheila, met him there. She stayed with him and then brought him
home. Once again, feeling so grateful
for the help we received.
Paul actually had been having a few good days…then Wednesday
night hit…it was so strange all of the sudden he was so sick…he was so nauseous
and started vomiting…he vomited so hard that he yelled out because he said he
felt like someone was stabbing him in the right eye. He could hardly open it. He said it was very painful…I called our
friend who is a doctor…he had me check on some things and we determined that it
was something just to keep an eye on…no pun intended!
With time, Paul’s eye didn’t hurt as bad...when we awoke the
next morning I noticed that something looked really funky about his eye…well,
not actually the eye itself…it was not bloodshot or anything…his eyelid and the
area around his eye was really swollen and droopy…evidently the force from
vomiting did something to the tissues around his eye…the doctors don’t seem to
concerned about it…it is starting to get better.
Paul continued to be violently ill on Thursday, January 17th. What a sad day to be sick…let me explain
why. Our daughter, Katie, has some
friends, Justin and Emily, who wanted to help us by getting a fundraiser set
up. They had arranged for Peter
Breinholt, Ryan Shupe, and Nancy Hanson to perform at a private concert for our
friends and family. It was to be held
that evening at 7:00, at The Castle Reception Center (which was also donated
for the cause). What an amazing
fundraiser!
The fundraiser was a surprise for Paul until a couple days
before it happened…then we had to tell him about it. He was so excited…he couldn’t believe that
they were willing to do this for him.
Needless to say, we were both very sad that we were unable to attend
this special event…we both cried….we so desperately wanted to be there.
The fundraiser was a huge success. We heard that it was absolutely amazing! We are grateful for friends who recorded it
for us and for family who took pictures!
A huge thank you to Justin and Emily for getting this arranged! Also, a huge thank you to the performers! What amazing people they are to take time to
do a private concert in our behalf! And of course, a big thank you to all our
wonderful family and friends who came out to support us!
Paul was not doing much better on Friday, so he ended up at
the Acute Care Clinic at Huntsman. Because I had to get one of my lovely
injections that afternoon, a friend took him down for me. Another friend took me to get my injection
and then drove me down to be with Paul.
I was still not feeling 100%.
Paul received a couple liters of IV fluids and was given
larger doses of pain meds and anti-nausea medication. He slept peacefully. I was relieved to see him so
comfortable. It was determined they are
going to put a vent in to Paul’s abdomen to release the pressure from the
gasses caused by his bowel obstruction.
This vent should help with his nausea and pain. The only problem is we are still waiting for
it to be placed. We meet with the doctor
who is doing the procedure tomorrow…which means more waiting until it gets
placed. Obviously, if we had our way it
would have been placed by now!
Paul has been doing better now that we increased the
anti-nausea and pain medications. He had
his third round of chemotherapy yesterday.
Interestingly, last night he started to feel really yucky again and
throwing up…now we are thinking maybe this is a result of the chemotherapy…the
same time frame as last week…
I am happy to say that Paul only had the one episode last
night. He has done fairly well
today. He has been very tired because of
a new medication they started, but other than that he did better than usual
today.
Paul is scheduled to do three more rounds of chemotherapy
and then have a scan. If the tumors are
shrinking then we will continue…if they are not shrinking…well, I just don’t
want to go there right now…
We have been so blessed. My girls have been off track for
two weeks with one week to go. My friend
coordinated a sign up sheet to have the girls go somewhere every day while they
are off track. Thank you to all the wonderful people who have taken our girls
for us while they have been off track. I
have the best friends ever. This has
helped us out tremendously!
Thank you to everyone for all your kindness and concern…the
plates of food, the phone calls, the notes, etc. We consider you our angels!
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